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Is there anyone who has Lupus Disease?

Is there anyone who has Lupus Disease? Topic: Case sle
April 21, 2019 / By Malach
Question: Is there anything you can do to get rid of the pain. and what are the things you can eat. my father just found out he has Lupus and I am trying to find people who can help me . so I can help him so he isn't in so much pain. please and thank you
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Best Answers: Is there anyone who has Lupus Disease?

Kiley Kiley | 5 days ago
I'm sorry that your father and the rest of your family have to go through this, but Lupus is definitely not a death sentence. There are at least 3 different forms of Lupus, Systemic Lupus Erythematosus (SLE), Discoid Lupus Erythematosus and drug-induced Lupus Erythematosus. I'm presume you're referring to SLE. This website here (http://www.ncbi.nlm.nih.gov/pubmedhealth... has a lot of information on Lupus. There are also many support groups, online and probably in your city. Some good online ones- http://www.healthboards.com/ http://www.inspire.com/groups/autoimmune... http://www.dailystrength.org. http://www.thelupussite.com/forum/index.php And many more- http://www.google.co.nz/search?q=lupus+support+groups&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a#sclient=psy&hl=en&client=firefox-a&hs=44M&rls=org.mozilla:en-US%3Aofficial&biw=1031&bih=504&source=hp&q=lupus+boards&aq=f&aqi=&aql=&oq=&pbx=1&fp=4aebb38dded65ca0 There will be people on here who have Lupus or know someone close who does, and will be able to help you, but these sites have lots of people who have Lupus. These people have been through what your Dad is going through. Ultimately though, you Dad needs a good rheumatologist. A rheumatologist diagnoses and treats Lupus, so that's the best person to ask advice. If he has rashes, it's best to see a dermatologist. There are many diets and alternative options that some people strongly recommend, but if it was me, I would stay well away. Recommend he eats a diet full of fruit, veges, lean meat and grains. Avoid alcohol, excess sugar and fat and drink plenty of water. It's really about a life style change that's healthy. Also, every case of Lupus is slightly different. Some people have organ involvement, some people don't. Some people have skin problems, some don't. It's really about treating the symptoms and looking after your health. Lupus is uncommon as it is, but a male having Lupus is even more rare. A thing with males is they like to pretend they're not sick. So who ever got him to the doctor did a good job! He may also want to act tough, like he's not in pain, because it's not seen as a 'manly' thing. But keep an eye on him. If you see him getting more quiet than usual, or he is looking unwell, then say something. Ask him how he's feeling and make sure he sees his specialist. There are a range of medications for Lupus as well. Has he been prescribed anything? I'm not an expert on Lupus by any means, and even people who have it aren't. He needs to keep a good relationship with his doctors. Do some research online (on reputable sites) because there's heaps of information out there. Lastly, Lupus is genetic. So if you feel unwell and have any similar symptoms, you should see a doctor. ....
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Kiley Originally Answered: Is there anyone who has Lupus Disease?
I'm sorry that your father and the rest of your family have to go through this, but Lupus is definitely not a death sentence. There are at least 3 different forms of Lupus, Systemic Lupus Erythematosus (SLE), Discoid Lupus Erythematosus and drug-induced Lupus Erythematosus. I'm presume you're referring to SLE. This website here (http://www.ncbi.nlm.nih.gov/pubmedhealth... has a lot of information on Lupus. There are also many support groups, online and probably in your city. Some good online ones- http://www.healthboards.com/ http://www.inspire.com/groups/autoimmune... http://www.dailystrength.org. http://www.thelupussite.com/forum/index.php And many more- http://www.google.co.nz/search?q=lupus+support+groups&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a#sclient=psy&hl=en&client=firefox-a&hs=44M&rls=org.mozilla:en-US%3Aofficial&biw=1031&bih=504&source=hp&q=lupus+boards&aq=f&aqi=&aql=&oq=&pbx=1&fp=4aebb38dded65ca0 There will be people on here who have Lupus or know someone close who does, and will be able to help you, but these sites have lots of people who have Lupus. These people have been through what your Dad is going through. Ultimately though, you Dad needs a good rheumatologist. A rheumatologist diagnoses and treats Lupus, so that's the best person to ask advice. If he has rashes, it's best to see a dermatologist. There are many diets and alternative options that some people strongly recommend, but if it was me, I would stay well away. Recommend he eats a diet full of fruit, veges, lean meat and grains. Avoid alcohol, excess sugar and fat and drink plenty of water. It's really about a life style change that's healthy. Also, every case of Lupus is slightly different. Some people have organ involvement, some people don't. Some people have skin problems, some don't. It's really about treating the symptoms and looking after your health. Lupus is uncommon as it is, but a male having Lupus is even more rare. A thing with males is they like to pretend they're not sick. So who ever got him to the doctor did a good job! He may also want to act tough, like he's not in pain, because it's not seen as a 'manly' thing. But keep an eye on him. If you see him getting more quiet than usual, or he is looking unwell, then say something. Ask him how he's feeling and make sure he sees his specialist. There are a range of medications for Lupus as well. Has he been prescribed anything? I'm not an expert on Lupus by any means, and even people who have it aren't. He needs to keep a good relationship with his doctors. Do some research online (on reputable sites) because there's heaps of information out there. Lastly, Lupus is genetic. So if you feel unwell and have any similar symptoms, you should see a doctor. ....

Jancis Jancis
My spouse was once identified with Lupus at 15 so the character who mentioned that they too younger to have Lupus is much off base. The typical character is identified among 15-forty five. According to the CDC, 1500 deaths in keeping with 12 months are related to Lupus. Lupus factors a different 22,000 medical institution admissions in keeping with 12 months of every week or longer. There is not any set typical on how lengthy any individual lives with lupus. It fairly relies on the aggressiveness of the ailment. If it assaults your organs equivalent to kidneys, center, lungs, mind then the morbidity cost raises tremendously. Whereas many men and women with milder signs have a tendency to are living average lifespans. It is principal that your buddy comply with the propose of the medical professionals treating them. You must consistently search out a moment opinion. The query is, how was once Lupus identified within the first location? Knowing that might aid assess if the health practitioner was once within the proper realm with the prognosis.
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Eppie Eppie
The body's natural defenses, called the immune system, protect us from viruses, bacteria, and other foreign invaders. But in people with lupus, the immune system can't tell the difference between foreign substances and the healthy cells and tissues. There is no cure for lupus, but, in most cases, the disease can be managed. Because of better detection and early treatment, between 80% and 90% of people with lupus can look forward to a normal lifespan, according to the LFA. But You can try helping your father eat healthy foods. Like Not alot of Starch such as Pasta, Or Alot of rice. Don't eat alot of Saturated Fats Either and eat alot of fruits and vegetables everyday. And tell him to start eating portions of foods. Hope this helped :)
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Ciss Ciss
He should adopt an overall healthy diet. The only thing to avoid is alfalfa sprouts. He needs to work with his rheumatologist to bring lupus under control. Your DAD also needs to learn about his disease. If you do all the worrying and caring and learning, he won't have to. Give him some time to adjust to the diagnosis. You can learn about lupus and when he is ready, you can share the information with him. Some people have given you excellent links here. People who live successfully with lupus are people who decide to take charge of their health. You can't do that for him. I am 59 and have systemic lupus with major organ involvement.
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Ciss Originally Answered: Someone with Celiac Disease?
I was so sick for almost a year, it was terrible.. I was told I had IBS, lactose intolerance, an eating disorder, needed a therapist, etc. it was all very frustrating until my husband and I figured it out and demanded the celiac screening blood work! I was so positive for gluten antibodies that I was literally off the measurement scale. Getting in to see a gastroenterologist is the next hurdle. You feel so bad and just want to get better and it can literally be MONTHS before you can get in... even if you do, it is likely that you will get bumped for a more urgent appt or procedure and you have to wait some more. THEN there is the whole change of diet that you have to do. Some dieticians are very helpful, others not so much.. happily I live near a really good store so I have plenty of gf options. I already made my own bread and ate whole foods only, so that wasn't such a hard transition. The food is really expensive though. It is $6.50 US for a bag of Glutino pretzels here. A reg bag is about $2.50 For some people it is a total life style change, and that can be very hard to adjust to. The hardest part is keeping safe in a very gluteny world. It is hard to go out to eat (I stick to Indian restaurants mostly, most of that is gf and vegetarian) sometimes. Sometimes people accidently gluten you because they simply do not know how to keep from contaminating your food. You have to ask a LOT of questions and double check everything, so you have to be ready to assert yourself, talk to chefs and managers, etc. just so you can walk out without being sick in a few hours.... Then there is the pressure from people who don't get it. "Take a benadryl" is what I get a lot of. Other people just want me to "try a little" of something, which I can't, then they get their feelings hurt, or angry or something. I tend to ignore and avoid those people. Other people don't believe you when you describe how debilitating it can be if you are glutened, etc. and question how ill you feel. sigh. Then you have people who feel like your medical condition is a pain all around and no one else should be bothered to deal with it. So,all in all, a lot of times I simply do not eat out or at other people's homes because I don't want to get ill. Socially, it is a pain in the tush, lol! I generally eat before we go anywhere, and try to make plans that don't include trying to eat out. (Hiking,biking, baseball games, etc.) Alll in all, since my kitchen and house is gluten free, I feel pretty normal most of the time. I bring my own plate to picnics, eat before I go out or pack something I can eat and take it with me. I do sometimes want to make a card that explains celiac and hand that out when people ask questions about why I am not eating (no, I do not hate your food or have an eating disorder"). I do feel better now that I am gluten free, but I wish the diagnosis came sooner. I have good and less energetic days, I get sick for a month when I do get glutened, and it is awful putting your life on hold while you heal. I think it is much harder for teens than any other age group. I can go on and on, but instead I am sending you to the celiac.com forum where you can read the postings.. that should help a lot getting a pov and tons of info on this very common genetic disorder. Hope it helps and I hope I helped you with your report! http://www.glutenfreeforum.com/

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